Blog

We want to amplify the voices of the people we support, so we share their stories and experiences on our blog. We also work in the open, sharing our work and our thinking as it happens.

23 April 2025

Resolving disputes: Health and welfare attorneys tell us they need more support

There are significant gaps in the support available to enable health attorneys to make decisions for the people they love.
18 March 2025

At the end of life, we don’t just need service change, we need culture change.

How can we foster a societal shift where people and communities own dying, not healthcare services?

Advance care planning Research and policy
12 September 2024

People’s voices matter. To transform end-of-life care for the better, we must listen to them

Our response to Lord Darzi’s independent investigation of the NHS in England.

Research and policy
15 August 2024

Digital approaches to advance care planning: How are they used, and what else is needed?

This guest post from the University of Leeds talks about their research on how digital end-of-life records are being used in practice.

Guest post Electronic end-of-life records Advance care planning
1 August 2024

Why is it important to start advance care planning conversations early and before crisis?

A guest post from Jill which asks healthcare professionals to have advance care planning conversations much earlier, before a crisis hits.

Guest post Advance care planning
28 March 2024

DNACPR: same old problems – how do we get better?

Our recent report highlighted some big problems with the way Do Not Attempt Cardio Pulmonary Resuscitation (DNACPR) decisions are being made and communicated.

Do not resuscitate (DNR)
30 October 2023

Supporting best interests decision-making: our discovery research

Since we launched our new in-depth support service in the spring, we’ve been inundated with calls.

Our thoughts Working in the open
27 September 2023

We are all going to die

A guest post from Marion says death is the one thing of which we can all be sure, but none of us know how or when.

Guest post Living will (advance decision)
25 July 2023

Recognising the past when planning for the future

An advance statement for people who have experienced homelessness

Advance statement
17 March 2023

Why we’re re-building our online advance decision (living will) service

Much has changed in the seven years since we launched our original service. Now is the time to raise it up to the standard of the modern internet.

Working in the open Living will (advance decision)
3 March 2023

Solving whole problems for people – why we’re expanding our service

What people have told us about using advance decisions (living wills) and LPAs, and what we’re doing to help.

Working in the open Getting help Asking questions
24 February 2023

No more bodiless hands – our approach to photography

We steer clear of euphemisms when talking about death. Our imagery should be no exception to this.

Our thoughts Working in the open

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