Research reports

We use our research reports to amplify the voices and stories of people we support. Our full collection of published research, all in one place.

Research 13 March 2024

What people need from a DNACPR decision and discussion

Findings from focus groups with older people.
Research 13 September 2023

Advance Care Planning with people from South Asian Communities

We partnered with Subco Trust and the University of Bristol’s Good Grief Connects project to co-produce advance care planning workshops for South Asian elders.
Research 9 June 2023

Peer support, power and personalisation

A pilot project for people with a serious or terminal diagnosis.
Research 2 November 2022

Voluntarily stopping eating and drinking (VSED)

There is a stark lack of UK guidance on VSED for people who wish to consider this option and for the clinicians caring for them.
Research 1 September 2022

Electronic end-of-life records – what people need

A lack of adequate systems to share end-of-life wishes causes anxiety and poor experiences at the end of life. This report proposes an overhaul of electronic records and sets out what people need them to do.
Research 18 March 2021

DNACPR decisions before and during the Coronavirus pandemic – what we’ve learned

This report looks at people’s experiences of DNACPR decisions during and before the Coronavirus pandemic.
Research 7 August 2019

Advance decisions – uncovering what GPs need

This research reveals that GPs lack sufficient awareness and understanding of advance decisions (living wills), with potentially damaging consequences for patients.
Research 30 November 2018

I wish I had known

Reflections from supporting 25,000 people plan for the end of life.
Research 1 October 2018

Advance care planning in general practice – does policy match reality?

Findings from a Freedom of Information request to Clinical Commissioning Groups.
Research 30 August 2018

The role of Ambulance Trusts in respecting people’s end-of-life wishes

Findings from a Freedom of Information request.

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