Research reports

This report examines who contacts us, what they talk about and how we help them. It also demonstrates the importance of our work in empowering people to take control of their care.

In March 2017 there was a short debate in the House of Lords on end of life care. We welcomed the debate and submitted this briefing on it.

Reflections from supporting 25,000 people plan for the end of life.

This research reveals that GPs lack sufficient awareness and understanding of advance decisions (living wills), with potentially damaging consequences for patients.

This report looks at people’s experiences of DNACPR decisions during and before the Coronavirus pandemic.

A lack of adequate systems to share end-of-life wishes causes anxiety and poor experiences at the end of life. This report proposes an overhaul of electronic records and sets out what people need them to do.

Findings from a Freedom of Information request to Clinical Commissioning Groups.

There is a stark lack of UK guidance on VSED for people who wish to consider this option and for the clinicians caring for them.

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