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We want to amplify the voices of the people we support, so we share their stories and experiences on our blog. We also work in the open, sharing our work and our thinking as it happens.
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22 February 2019
Hope and dying: separating hope from health
Molly has kidney cancer. Here she shares her thoughts on why we need to separate hope from health
Guest post
15 February 2019
It’s not you, it’s them — how other people might react to your illness — and how to handle them
Today’s guest post comes from Trish Greenhalgh — professor of primary care health sciences, University of Oxford and co-author of The Complete Guide to Breast Cancer
Starting conversations
Guest post
8 February 2019
Advance Decisions: uncovering what GPs need
We just finished a 10-week discovery, here’s what we found
Healthcare professionals
Living will (advance decision)
Working in the open
31 January 2019
End of life discussions beyond the bedside
Today’s guest post comes from Ivor Williams. Ivor leads end of life care projects at the Helix Centre at Imperial College London
Guest post
29 January 2019
How opening up resources is helping us deliver our mission
Some of our printed resources are now available via a Creative Commons licence so organisations can make them part of their work in a way that makes sense for everyone
Working in the open
18 January 2019
Whatever you do, don’t say ‘dead’…
Recently, we found ourselves fascinated by a Twitter thread started by Cass HM for an embroidery project she’s working on
Our thoughts
11 January 2019
Personalised care…will it ever be?
Another blog on the NHS Long Term Plan (LTP). Sorry.
Our thoughts
4 January 2019
Balancing optimism with reality when planning for our future
Whilst we like to think of ourselves as logical, rational beings, many of us are affected by optimism bias, and it deeply impacts our decision making
Our thoughts
Advance care planning
12 December 2018
Clinically Assisted Nutrition and Hydration – new guidance for doctors
Celia has worked on issues surrounding decision-making and mental capacity for many years, and was a member of the core group who produced the new guidance published today
Guest post
Healthcare professionals
5 December 2018
Do not resuscitate: waiting for a “Blue Planet moment”
What will it take to wake people up to this? DNACPR is about protecting and valuing people. It is not an insult. I wish more people knew this
Do not resuscitate (DNR)
Guest post
30 November 2018
I wish I had known…
Reflections from supporting 25,000 people plan for the end of life
Guest post
Our thoughts
12 November 2018
In conversation with Greg Wise
I spoke with actor, producer and author Greg Wise about how we talk about death, the medicalisation of death, and Greg’s own experiences with his sister Clare through her cancer diagnosis until her death in 2016
Guest post
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