Blog

We want to amplify the voices of the people we support, so we share their stories and experiences on our blog. We also work in the open, sharing our work and our thinking as it happens.

31 January 2023

How will paramedics know my wishes?

Findings from a Freedom of Information (FOI) request.

Freedom of Information (FOI) Working in the open Electronic end-of-life records
7 December 2022

Talking and planning for the end of life can support our experience of grief

“She had a very good death and I was just really grateful she got what she wanted.”

Guest post
29 November 2022

Waiting times for Lasting Power of Attorney (LPA) applications

What you can do while you wait.

Power of attorney
24 November 2022

Planning ahead as a carer

A new carers advance statement

Working in the open Advance statement
1 November 2022

Electronic end-of-life records

Where we are and where we need to be

Electronic end-of-life records Research and policy Working in the open
17 October 2022

Advance Care Planning

Recent events have made Molly reflect on just how important it is to put your wishes down in writing

Guest post Advance care planning
3 October 2022

The NHS is in crisis

What does this mean for the people we support?

Working in the open
19 July 2022

When my husband was dying, Sarah Malik was a life-changer for me

…and, in the same way, she was a death-saver for my husband.

Guest post
1 June 2022

Planning end of life care with people who have learning disabilities

Today’s guest post comes from Beth Britton, a Consultant for MacIntyre’s Dying to Talk Project.

Guest post
6 May 2022

What The Split gets wrong about Advance Decisions

…and what you REALLY need to do

Living will (advance decision)
5 May 2022

Knowing what to expect

A game changer

Peer support Our thoughts Advance care planning
17 March 2022

Why Universal Principles for ACP is a great step forward

…and the direction of travel it signposts

Advance care planning Mental capacity Our thoughts

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