Victoria Butler-Cole April_DSC3980 (3)resizedVictoria Butler-Cole – Chair

Victoria Butler-Cole is a barrister at 39 Essex Street Chambers. Her background is in philosophy, law and medical ethics and before becoming a barrister, she lectured in medical ethics, worked for various health charities, and was Assistant Director of the Nuffield Council on Bioethics. She now works in the areas of healthcare and human rights law, with a focus on the Court of Protection and the Mental Capacity Act 2005.



Niccola SwanNiccola Swan – Treasurer

Niccola has recently retired as the director at Leeds Mind but continues to have a number of voluntary mental health roles, as well as being a governor of an NHS trust and a director of Healthwatch Leeds. She has wide experience as a charity trustee. She was deputy chief executive of the Employers’ Forum on Disability for two and a half years.

Previously she worked for Barclays PLC for 25 years, ending her career there in 2005 as Regional Director for the North East and also having been Diversity Director for the Barclays Group globally. She was a board member of Dignity in Dying from 2008 to 2011.



Mark Jarman-HoweMark Jarman-Howe

Mark Jarman-Howe is Chief Executive of the largest hospice in the East of England and has valuable insight into the UK hospice movement. He was a founding director and first Chairman of the Hospice Quality Partnership Ltd, and for three years was regional representative on the national Advisory Council for Hospice UK and therefore has a broad awareness of how health care works in the UK.





Paul WoodwardPaul Woodward

Paul recently retired after 7 years as CEO of Sue Ryder. He currently sits on the Board of St Elizabeth Hospice in Ipswich and is Chair of Income Generation. Previous roles within the charity sector include Chair, Vice Chair and Trustee of a number of organisations including the Family Planning Association, Voluntary Organisations Disability Group and Buckinghamshire Care.

Prior to this Paul spent 30 successful years in the Pharmaceutical Industry in a number of disciplines; including Finance, Marketing and General Management culminating in the role of CEO of Schering AG UK and a member of the Europe Board in Germany.




Barbara MonroeBarbara Monroe

Barbara was a social worker for over 40 years. She joined St Christopher’s Hospice in 1987, and was Chief Executive there between 2000 and 2014.

Barbara was founder and Director of the Candle children’s bereavement project and Chair of the national Childhood Bereavement Network. She was Module Leader on the MSc in Palliative Care and Policy run jointly by St Christopher’s and King’s College London. She has led and lectured on numerous international training programmes.

Barbara has written extensively about psychological and social aspects of palliative care and sat on many national committees supporting the strategic development of end of life care. She was appointed Dame Commander of the Order of the British Empire in 2010 and is an experienced charity trustee.




Royal Institution of Great BritainDr Helen Jamison

Dr Helen Jamison is Head of Media at the Wellcome Trust, a global charitable foundation dedicated to improving health. She was previously Deputy Director and is now a trustee of the Science Media Centre, an independent press office ensuring the public have access to accurate information when science and health issues hit the headlines. She has also worked at the science journal Nature, and has a PhD in neuroscience and degree in biomedical science. Helen has a particular interest in the evidence-based communication of information about end of life and dying to patients and the public.



Karen SumpterKaren Sumpter

Karen Sumpter is a Senior Lecturer in the Adult Nursing team at University of Hertfordshire. Karen has been a Registered Nurse for 30 years. The early part of her career was spent in the NHS, specialising in ENT and Head & Neck nursing, gaining management experience up to Directorate Lead Nurse level. Karen then moved to the voluntary sector and held a senior post in a hospice for 10 years with responsibility for staff management, service development and end of life education. During this time, she gained a Master’s Degree in Management & Leadership. Prior to commencing her current post at University of Hertfordshire, Karen worked as Head of Clinical Services for a national cancer charity. Karen’s interests include communication skills, team working, and end of life care. Karen is a Registered Nurse Teacher and a Fellow of the Higher Education Academy.



Jo GibbonsJo Gibbons

Jo has over 30 years experience in campaigning working across government, the voluntary, public and private sectors. Currently working in health communications at PwC, she has worked as a senior adviser for Tony Blair in Downing Street and moved with the former Prime Minister after he left office as his Director of Corporate Affairs.

Previously to that she was a Board Director at communications consultancy Edelman heading up the corporate and public affairs practice, and has also worked as a Special Adviser to Baroness Jay of Paddington and in PR roles at the FA, Labour Party, Citizens Advice Bureaux and various other organisations. Jo is also a Home-Start volunteer.