Our free information line helps people to get the treatment and care that’s right for them. We support people to plan ahead and record their goals and priorities for the end of their life, or when living with a life-changing illness. Our specialist nurse helps people think through their treatment options and have conversations with their family and healthcare team.
Our Peer Navigator draws from her own personal experience of living with a life-changing condition to support others in a similar situation. The service is for anyone who has received a new diagnosis or is living with a long-term condition, and can help them come to terms with their situation, speak to relatives and doctors, and plan next steps.
The Peer Navigator service can help people to:
We work with people from diverse faith; black, Asian, and minority ethnic; and lesbian, gay, bisexual and trans (LGBT) communities to enable people to plan ahead for their treatment and care.
We do this through:
We’re working in Lambeth, South London and are part of the Lambeth Advance Care Planning Consortium (which promotes advance care planning across Lambeth) and the Lambeth Wellbeing Partnership (improving the health and wellbeing of the Portuguese speaking community in Lambeth).
We provide free information to help people understand their options. This includes booklets for people at the end of life or living with life-changing illness. We provide Advance Statements and Advance Decisions (‘Living Wills’) for people who want to record their wishes for care, or who have views about treatment they wouldn’t want to receive.
We provide tailored resources for Black, Asian, and minority ethnic, LGBT and faith groups.
Our MyDecisions website helps people make an Advance Decision and/or Advance Statement online. Developed in collaboration with healthcare professionals, legal experts and people who have been supported by our services, the website guides people through a series of questions to help them consider what’s important to them. It then generates a personalised Advance Decision or Advance Statement document to print, sign and share.
We offer Continuing Professional Development (CPD)-accredited training to enable healthcare professionals and community organisations to develop their understanding of the Mental Capacity Act, and their confidence around having advance care planning conversations.
We undertake research into the experiences of dying people and those living with life-changing illness, to inform policy makers and promote patient-centred care. By sharing what we know about what is and is not working for dying people and carers, we hope to accelerate the pace of a much needed culture change around death and dying across the UK.
We also share what we learn from supporting people through our services and from our research on our blog.
If you’d like to talk to us about what we do email firstname.lastname@example.org.