This Advance Decision pack contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
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This Advance Decision pack contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
This factsheet explains what an Advance Decision is, what it can and can’t be used for, and the steps involved in completing one. This is applicable to people living in England and Wales.
This factsheet explains what a Lasting Power of Attorney for Health and Welfare is, how one can be used, and how to make one. This is for people living in England and Wales.
New research has revealed that one in five dying patients receive treatment their friends and family say they would not have wanted, with almost half (47%) feeling their loved one had a bad death.
This is our flagship publication, aimed at those wishing to understand their rights to make decisions about their own care as they come towards the end of their life.
This factsheet explains who will make decisions about your treatment and care if you are unable to make decisions for yourself and have not planned ahead by making an Advance Decision or Lasting Powers of Attorney.
This factsheet explains what is meant by the term Advance Care Planning and the purpose of an Advance Care Plan. It is applicable to people living in England and Wales.
This factsheet explains why it is a good idea to regularly review or update your Advance Decision, and how to do it.
This factsheet covers some problems that our service users have experienced when speaking to their doctor about their Advance Decision.
This factsheet explains how to make sure that your Advance Decision is legally binding. This is applicable to people living in England and Wales.
This factsheet is a quick guide to Summary Care Records for people living in England.
This factsheet outlines the differences between Advance Decisions and Health and Welfare Lasting Powers of Attorney. It explains how they work together and what happens if you want to have both documents. It is for people in England and Wales.
This factsheet is for people with a mental illness, or a history of mental illness, who want to understand when their Advance Decision will be followed.
This factsheet explains what an Advance Directive is, what it can and cannot be used for, and the steps involved in completing one. This is applicable to people living in Scotland.
This factsheet explains what an Advance Statement is and how it differs from an Advance Decision. It is applicable to people living in England and Wales.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
A Parliamentary briefing for the House of Commons estimates day debate on end-of-life care, scheduled to be held Wednesday 2nd March 2016
On Wednesday 1st March there will be a short debate in the House of Lords on end of life care. Compassion in Dying welcomes this debate, and has written this briefing on it
In order to improve end-of-life care it is crucial to understand what patients and carers want from care providers. Secondary analyses of qualitative interviews with people caring for a dying relative were conducted to examine what co-ordinated, person-centred care at the end of life looks like, with an emphasis on the carer’s perspective.
In order to ensure our work is evidence based, we keep up-to-date with current policy and research. Alongside this we conduct our own research and information-gathering. Our Policy Manifesto sets out the challenges we have identified to enabling greater patient choice at the end of life, and what we envisage as the way forward.
A report which examines whether patients had record, or made known, their wishes recorded and if this impacted on whether they died well or badly.