This is a large print version of our Advance Decision pack for those who would might find it easier to read. It contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
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This is a large print version of our Advance Decision pack for those who would might find it easier to read. It contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
This Advance Decision pack contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
This Advance Statement allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
This booklet aims to support you to talk about your wishes for care and treatment with your family, friends and doctor.
This new booklet is designed to help people who have been recently diagnosed with a terminal illness find the information they need and ask questions, so that they can make informed decisions about their treatment and care – helping them to live well in the time they have left.
A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
New research reveals that GPs lack sufficient awareness and understanding of Living Wills, with potentially damaging consequences for patients.
This factsheet explains what an Advance Decision is, what it can and can’t be used for, and the steps involved in completing one. This is applicable to people living in England and Wales.
This factsheet explains why it is a good idea to regularly review or update your Advance Decision, and how to do it.
This factsheet will to help make sure people are aware of your Advance Decision.
This factsheet outlines the differences between Advance Decisions and Health and Welfare Lasting Powers of Attorney. It explains how they work together and what happens if you want to have both documents. It is for people in England and Wales.
This factsheet is for people with a mental illness, or a history of mental illness, who want to understand when their Advance Decision will be followed.
This factsheet explains what an Advance Directive is, what it can and cannot be used for, and the steps involved in completing one. This is applicable to people living in Scotland.
This is a bilingual version of our Advance Statement. It is in English and Portuguese. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This is a bilingual version of our Advance Statement. It is in English and Spanish. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
A Parliamentary briefing for the House of Commons estimates day debate on end-of-life care, scheduled to be held Wednesday 2nd March 2016
On Wednesday 1st March there will be a short debate in the House of Lords on end of life care. Compassion in Dying welcomes this debate, and has written this briefing on it
In order to improve end-of-life care it is crucial to understand what patients and carers want from care providers. Secondary analyses of qualitative interviews with people caring for a dying relative were conducted to examine what co-ordinated, person-centred care at the end of life looks like, with an emphasis on the carer’s perspective.
In order to ensure our work is evidence based, we keep up-to-date with current policy and research. Alongside this we conduct our own research and information-gathering. Our Policy Manifesto sets out the challenges we have identified to enabling greater patient choice at the end of life, and what we envisage as the way forward.
