This is a large print version of our Advance Decision pack for those who would might find it easier to read. It contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
In this section you can view and download all of our factsheets, research and publications free of charge. To find what you need, click on the categories and topics on the right hand side or type into the search box.
If you can’t find what you need, or have any questions, please feel free to get in touch.
We are committed to providing up-to-date and accurate information, and are proud to have received accreditation from the NHS England Information Standard.
All of our printed information written for the public that meets these requirements carries the Information Standard logo.
Read more about how we produce our information.
This is a large print version of our Advance Decision pack for those who would might find it easier to read. It contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
This Advance Decision pack contains an Advance Decision form and comprehensive guidance notes explaining everything you need to know to complete it.
This Advance Statement allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
This booklet aims to support you to talk about your wishes for care and treatment with your family, friends and doctor.
This new booklet is designed to help people who have been recently diagnosed with a terminal illness find the information they need and ask questions, so that they can make informed decisions about their treatment and care – helping them to live well in the time they have left.
This factsheet explains what is meant by the term Advance Care Planning and the purpose of an Advance Care Plan. It is applicable to people living in England and Wales.
A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
This factsheet explains what an Advance Decision is, what it can and can’t be used for, and the steps involved in completing one. This is applicable to people living in England and Wales.
This factsheet explains why it is a good idea to regularly review or update your Advance Decision, and how to do it.
This factsheet covers some problems that our service users have experienced when speaking to their doctor about their Advance Decision.
This factsheet explains how to make sure that your Advance Decision is legally binding. This is applicable to people living in England and Wales.
This factsheet will to help make sure people are aware of your Advance Decision.
This factsheet outlines the differences between Advance Decisions and Health and Welfare Lasting Powers of Attorney. It explains how they work together and what happens if you want to have both documents. It is for people in England and Wales.
This factsheet is for people with a mental illness, or a history of mental illness, who want to understand when their Advance Decision will be followed.
This factsheet explains what an Advance Directive is, what it can and cannot be used for, and the steps involved in completing one. This is applicable to people living in Scotland.
This is a bilingual version of our Advance Statement. It is in English and Portuguese. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This is a bilingual version of our Advance Statement. It is in English and Spanish. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This factsheet explains what an Advance Statement is and how it differs from an Advance Decision. It is applicable to people living in England and Wales.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
A Parliamentary briefing for the House of Commons estimates day debate on end-of-life care, scheduled to be held Wednesday 2nd March 2016