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Advance Statement Featured

This Advance Statement allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.

Starting the Conversation Featured

This booklet aims to support you to talk about your wishes for care and treatment with your family, friends and doctor.

Advance Statement - Portuguese

This is a bilingual version of our Advance Statement. It is in English and Portuguese. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.

Advance Statement - Spanish

This is a bilingual version of our Advance Statement. It is in English and Spanish. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.

Ambulance trust's policies on recording end-of-life wishes - findings from a freedom of information request (2012)

In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).

Ambulance trust's policies on recording end-of-life wishes - findings from a freedom of information request (2014)

Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.

An analysis of calls to the Compassion in Dying information line (2013)

An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.

An analysis of calls to the Compassion in Dying information line (2013)

An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.

Compassion in Dying policy manifesto

In order to ensure our work is evidence based, we keep up-to-date with current policy and research.  Alongside this we conduct our own research and information-gathering. Our Policy Manifesto sets out the challenges we have identified to enabling greater patient choice at the end of life, and what we envisage as the way forward.

CPR decisions and DNAR forms

This factsheet explains what cardiopulmonary resuscitation (CPR) is, CPR success rates, how to refuse CPR, what a Do Not Attempt Resuscitation (DNAR) form is, how to get a DNAR form, and how a DNAR differs from an Advance Decision to Refuse Treatment.

I wish I had known

Through our information and outreach services we have supported over 25,000 people to make decisions about their treatment and plan their care. This report shares some of our learning.

Knowledge of end-of-life rights and choices - YouGov poll (2011)

In 2011, Compassion in Dying conducted a poll with YouGov on knowledge of end of life rights and choices. This poll found that 60% would want comfort care only if they were dying with no prospect of recovery in the last days and weeks of life, however only 3% had an Advance Decision which could state this. 53% wrongly believed that they had a legal right to make these kinds of decisions on behalf of their next of kin.

Plan well, Die well

New research has revealed that one in five dying patients receive treatment their friends and family say they would not have wanted, with almost half (47%) feeling their loved one had a bad death.

Resolving disagreements about someone’s treatment or care

This factsheet explains what you can do if there is a disagreement over
how someone should be treated or cared for. It includes information about
how treatment and care decisions are made on someone’s behalf if they
are unable to make or communicate a decision, and what steps you can
take if you disagree with the person in charge of their care.

Who do you want to make decisions for you at end of life? YouGov Poll (2014)

A YouGov poll, commissioned by Compassion in Dying, has found that 82% of people would want to be in control of life-prolonging medical treatments should they lose mental capacity. Only 7% would rather these decisions be made by a medical professional. However, the poll also revealed that only 4% of people have an Advance Decision or have appointed a Lasting Power of Attorney for health and welfare to ensure their medical treatment preferences can be respected.

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