A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
In this section you can view and download all of our factsheets, research and publications free of charge. To find what you need, click on the categories and topics on the right hand side or type into the search box.
If you can’t find what you need, or have any questions, please feel free to get in touch.
We are committed to providing up-to-date and accurate information, and are proud to have received accreditation from the NHS England Information Standard.
All of our printed information written for the public that meets these requirements carries the Information Standard logo.
Read more about how we produce our information.
A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
On Wednesday 1st March there will be a short debate in the House of Lords on end of life care. Compassion in Dying welcomes this debate, and has written this briefing on it
In order to improve end-of-life care it is crucial to understand what patients and carers want from care providers. Secondary analyses of qualitative interviews with people caring for a dying relative were conducted to examine what co-ordinated, person-centred care at the end of life looks like, with an emphasis on the carer’s perspective.
A report which examines whether patients had record, or made known, their wishes recorded and if this impacted on whether they died well or badly.
A pilot service in East London was evaluated 2013/2014. Numbers reached, learnings from the project, case studies and how this has informed the roll out to seven Age UKs across England are reported on.
