This Advance Statement allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
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This Advance Statement allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
This new booklet is designed to help people who have been recently diagnosed with a terminal illness find the information they need and ask questions, so that they can make informed decisions about their treatment and care – helping them to live well in the time they have left.
This factsheet explains what an Advance Decision is, what it can and can’t be used for, and the steps involved in completing one. This is applicable to people living in England and Wales.
This factsheet is for people with a mental illness, or a history of mental illness, who want to understand when their Advance Decision will be followed.
This is a bilingual version of our Advance Statement. It is in English and Portuguese. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
This is a bilingual version of our Advance Statement. It is in English and Spanish. It allows you to make a record of your wishes, feelings, beliefs and values, which can be used if you later become unwell and need care or medical treatment.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
In order to improve end-of-life care it is crucial to understand what patients and carers want from care providers. Secondary analyses of qualitative interviews with people caring for a dying relative were conducted to examine what co-ordinated, person-centred care at the end of life looks like, with an emphasis on the carer’s perspective.
In order to ensure our work is evidence based, we keep up-to-date with current policy and research. Alongside this we conduct our own research and information-gathering. Our Policy Manifesto sets out the challenges we have identified to enabling greater patient choice at the end of life, and what we envisage as the way forward.
A report which examines whether patients had record, or made known, their wishes recorded and if this impacted on whether they died well or badly.
This is a secondary analysis of interviews with patients about their experiences of living with terminal illness, with a view to understanding how they approach decision making at the end of life.
In 2011, Compassion in Dying conducted a poll with YouGov on knowledge of end of life rights and choices. This poll found that 60% would want comfort care only if they were dying with no prospect of recovery in the last days and weeks of life, however only 3% had an Advance Decision which could state this. 53% wrongly believed that they had a legal right to make these kinds of decisions on behalf of their next of kin.
A poll commissioned by Compassion in Dying examining how people want to be treated at the end of life, and looking at people’s knowledge of their end-of-life rights and choices.
This factsheet explains what a Lasting Power of Attorney for Health and Welfare is, how one can be used, and how to make one. This is for people living in England and Wales.
This factsheet is written in Bangla. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
This factsheet is written in Bengali. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
This factsheet is written in Gujarati. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
This factsheet is written in Hindi. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
This factsheet is written in Punjabi. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
This factsheet is written in Urdu. It explains the ways you can plan ahead for your treatment and care. It includes information about Advance Statements, Advance Decisions and Lasting Powers of Attorney for Health and Welfare.
You can also view this factsheet in other languages.
