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Ambulance trust's policies on recording end-of-life wishes - findings from a freedom of information request (2012)

In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).

Ambulance trust's policies on recording end-of-life wishes - findings from a freedom of information request (2014)

Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.

An analysis of calls to the Compassion in Dying information line (2013)

An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.

CPR decisions and DNAR forms

This factsheet explains what cardiopulmonary resuscitation (CPR) is, CPR success rates, how to refuse CPR, what a Do Not Attempt Resuscitation (DNAR) form is, how to get a DNAR form, and how a DNAR differs from an Advance Decision to Refuse Treatment.

Knowledge of end-of-life rights and choices - YouGov poll (2011)

In 2011, Compassion in Dying conducted a poll with YouGov on knowledge of end of life rights and choices. This poll found that 60% would want comfort care only if they were dying with no prospect of recovery in the last days and weeks of life, however only 3% had an Advance Decision which could state this. 53% wrongly believed that they had a legal right to make these kinds of decisions on behalf of their next of kin.

Plan well, Die well

New research has revealed that one in five dying patients receive treatment their friends and family say they would not have wanted, with almost half (47%) feeling their loved one had a bad death.

Who do you want to make decisions for you at end of life? YouGov Poll (2014)

A YouGov poll, commissioned by Compassion in Dying, has found that 82% of people would want to be in control of life-prolonging medical treatments should they lose mental capacity. Only 7% would rather these decisions be made by a medical professional. However, the poll also revealed that only 4% of people have an Advance Decision or have appointed a Lasting Power of Attorney for health and welfare to ensure their medical treatment preferences can be respected.

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