This framework has been designed to support GPs to have advance care planning conversations with patients by phone or video, in the context of coronavirus (COVID-19).
Our new report explores what we’ve learned about DNACPR decisions before and during the Coronavirus pandemic. It comes as the Care Quality Commission publishes its review into the use of DNR decisions over the past year, which we also contributed to.
This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
This new booklet is designed to help people who have been recently diagnosed with a terminal illness find the information they need and ask questions, so that they can make informed decisions about their treatment and care – helping them to live well in the time they have left.
A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
This factsheet explains what an Advance Directive is, what it can and cannot be used for, and the steps involved in completing one. This is applicable to people living in Scotland.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
An Analysis of Calls to the Compassion in Dying End-of-Life Rights Information Line was conducted by Loughborough University. This study, which looked at in excess of 200 calls to Compassion in Dying, found that a major barrier to patients exercising choice was doctors’ failure to engage with patients about their Advance Decision and the lack of systems in place to record them.
We wanted to learn more about whether patient choices at the end of life are respected if set out in an Advance Decision. We conducted a systematic review of research evidence which examined: To what extent are the medical treatment wishes laid out in preference tools respected?
In order to improve end-of-life care it is crucial to understand what patients and carers want from care providers. Secondary analyses of qualitative interviews with people caring for a dying relative were conducted to examine what co-ordinated, person-centred care at the end of life looks like, with an emphasis on the carer’s perspective.
This factsheet explains what cardiopulmonary resuscitation (CPR) is, CPR success rates, how to refuse CPR, what a Do Not Attempt Resuscitation (DNAR) form is, how to get a DNAR form, and how a DNAR differs from an Advance Decision to Refuse Treatment.
A report which examines whether patients had record, or made known, their wishes recorded and if this impacted on whether they died well or badly.
A pilot service in East London was evaluated 2013/2014. Numbers reached, learnings from the project, case studies and how this has informed the roll out to seven Age UKs across England are reported on.
Our new report details findings and recommendations from a pioneering project aimed at supporting Lambeth’s Portuguese-speaking communities to consider, document and share their preferences for care and treatment, thereby facilitating more meaningful discussions between Portuguese-speaking people and health and social care professionals.
This is a secondary analysis of interviews with patients about their experiences of living with terminal illness, with a view to understanding how they approach decision making at the end of life.
In 2011, Compassion in Dying conducted a poll with YouGov on knowledge of end of life rights and choices. This poll found that 60% would want comfort care only if they were dying with no prospect of recovery in the last days and weeks of life, however only 3% had an Advance Decision which could state this. 53% wrongly believed that they had a legal right to make these kinds of decisions on behalf of their next of kin.
A poll commissioned by Compassion in Dying examining how people want to be treated at the end of life, and looking at people’s knowledge of their end-of-life rights and choices.
My Life, My Decision was an ambitious, multifaceted programme of work aiming was to support people aged over 50 to think about and plan their care in advance, helping to ensure they have the death that is right for them.
This report is a summary of key learning and recommendations from our My Life, My Decision outreach programme.
Most people have some form of opinion about how they would like to be treated at the end of their lives, regardless of their identity or background. For LGBT people in particular, your identity might have an impact on the treatment and care you would like to receive.
Our new report details findings and recommendations from a pioneering project aimed at engaging the South Asian community in planning ahead for end-of-life care and treatment.
This report reveals that Ambulance Trusts across the UK vary significantly in their policies and practices regarding advance care planning documentation.
Our new report details findings and recommendations from a pioneering project aimed at engaging the Somali community in planning ahead for end-of-life care and treatment.
A YouGov poll, commissioned by Compassion in Dying, has found that 82% of people would want to be in control of life-prolonging medical treatments should they lose mental capacity. Only 7% would rather these decisions be made by a medical professional. However, the poll also revealed that only 4% of people have an Advance Decision or have appointed a Lasting Power of Attorney for health and welfare to ensure their medical treatment preferences can be respected.