Skip to content

Navigation breadcrumbs

  1. Home
  2. Blog
Upeka De Silva 15 October 2018

Check your privilege – exploring how GPs support patients with Advance Decisions

I’ve recently completed a Freedom of Information (FOI) request relating to the advance care planning policies of all 207 Clinical Commissioning Groups
Freedom of Information (FOI) Living will (advance decision) Research and policy Working in the open

I’ve recently completed a Freedom of Information (FOI) request relating to the advance care planning policies of all 207 Clinical Commissioning Groups. This included looking at how callers to our Information Line feel about interactions they’ve had with their GPs about Advance Decisions (also known as Living Wills).

I’m asking GPs to check their privilege

I don’t mean this as an insult. Instead, this is a plea to GPs to reflect on the privileged position they’re in to help people get the end-of-life treatment and care that is right for them.

I’d like GPs to reflect on this important role, and on whether they’re doing all they can to understand and support their patients to plan their future care.

The law is here to help

The Mental Capacity Act 2005 is an empowering piece of legislation. It helps people make decisions about their future treatment and care in advance. This means that, in the event they become unable to make these decisions for themselves, the treatment they receive would be in line with their values and priorities. It helps make person-centred care possible in a simple and meaningful way.

As set out in sections 24–26 of the Mental Capacity Act 2005:

  • Advance Decisions are legally binding documents provided they meet certain criteria.
  • Advance Decisions allow anyone over the age of 18 with mental capacity to record any medical treatments they do not wish to have in the future and they are not limited to refusals of cardiopulmonary resuscitation.
  • There is no set format for the document and you can complete them without the involvement of a solicitor or a healthcare professional.

You can get your own Advance Decision for free on our website.

The reality doesn’t always live up to the legislation

As part of my work I’ve been examining the experiences of callers to our Information Line. This free service offers people an opportunity to discuss and write down their treatment preferences. It’s a way for people to get information and share experiences.

Here are some examples of what callers have said in relation to disappointing experiences with their GPs:

We have to work together to make things better

I know that GPs are overstretched. I want to help. But first I need to understand why some opportunities to support people in taking control of their future care are being denied.

Whatever the reasons, I have no doubt that change is possible. I believe that GPs — the privileged gatekeepers to person-centred end-of-life care — can work with us to play a meaningful role in creating that change.

I hope this will lead to more calls like this:

I’ve completed my Advance Decision, discussed it with my GP, who put it on my records. I can now relax!

To find out more about how to make change happen you can read our full report.

If you’re a GP that wants to work with us to improve the experiences of your patients, drop me an email.

If you want to share your own experiences of talking to your GP about Advance Decisions, good or bad, you can call our information line on 0800 999 2434, email me, or send us a Tweet — we’d love to hear from you.

Is this page useful?

This field is for validation purposes and should be left unchanged.