This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
In this section you can view and download all of our factsheets, research and publications free of charge. To find what you need, click on the categories and topics on the right hand side or type into the search box.
If you can’t find what you need, or have any questions, please feel free to get in touch.
We are committed to providing up-to-date and accurate information, and are proud to have received accreditation from the NHS England Information Standard.
All of our printed information written for the public that meets these requirements carries the Information Standard logo.
Read more about how we produce our information.
This practical guide includes the information you need to understand how treatment and care decisions are made, how you can plan ahead to ensure you stay in control of these decisions, and who to talk to and share your wishes with.
A new research report reveals mismatch between Clinical Commissioning Group policies and the reality faced by patients. Patients report doctors being ill-equipped to support them to plan ahead for their future care and treatment.
In late 2011/early 2012 Compassion in Dying contacted all Ambulance Trusts in the UK with a Freedom of Information request, which asked questions on their Do Not Attempt Resuscitation (DNAR) policy, end-of-life care registration systems, out-of-hours care and the use of Advance Decisions (formerly known as living wills).
Prompted by callers to the Information Line – who voiced concerns that paramedics might not have access to their Advance Decision – we contacted all Ambulance Trusts in England and Wales to find out what systems they have in place to record patients’ medical treatment preferences in the event that they lose capacity and whether patient preferences are adhered to.
This factsheet explains what cardiopulmonary resuscitation (CPR) is, CPR success rates, how to refuse CPR, what a Do Not Attempt Resuscitation (DNAR) form is, how to get a DNAR form, and how a DNAR differs from an Advance Decision to Refuse Treatment.
A pilot service in East London was evaluated 2013/2014. Numbers reached, learnings from the project, case studies and how this has informed the roll out to seven Age UKs across England are reported on.
My Life, My Decision was an ambitious, multifaceted programme of work aiming was to support people aged over 50 to think about and plan their care in advance, helping to ensure they have the death that is right for them.
This report is a summary of key learning and recommendations from our My Life, My Decision outreach programme.
Most people have some form of opinion about how they would like to be treated at the end of their lives, regardless of their identity or background. For LGBT people in particular, your identity might have an impact on the treatment and care you would like to receive.
Our new report details findings and recommendations from a pioneering project aimed at engaging the South Asian community in planning ahead for end-of-life care and treatment.
